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BrainNet Europe's Code of Conduct for brain banking. / Klioueva, Natasja M; Rademaker, Marleen C; Dexter, David T; Al-Sarraj, Safa; Seilhean, Danielle; Streichenberger, Nathalie; Schmitz, Peer; Bell, Jeanne E; Ironside, James W; Arzberger, Thomas; Huitinga, I.

In: Journal of Neural Transmission, Vol. 122, No. 7, 07.2015, p. 937-40.

Research output: Contribution to journal/periodicalArticleScientificpeer-review

Harvard

Klioueva, NM, Rademaker, MC, Dexter, DT, Al-Sarraj, S, Seilhean, D, Streichenberger, N, Schmitz, P, Bell, JE, Ironside, JW, Arzberger, T & Huitinga, I 2015, 'BrainNet Europe's Code of Conduct for brain banking' Journal of Neural Transmission, vol. 122, no. 7, pp. 937-40. https://doi.org/10.1007/s00702-014-1353-5

APA

Klioueva, N. M., Rademaker, M. C., Dexter, D. T., Al-Sarraj, S., Seilhean, D., Streichenberger, N., ... Huitinga, I. (2015). BrainNet Europe's Code of Conduct for brain banking. Journal of Neural Transmission, 122(7), 937-40. https://doi.org/10.1007/s00702-014-1353-5

Vancouver

Klioueva NM, Rademaker MC, Dexter DT, Al-Sarraj S, Seilhean D, Streichenberger N et al. BrainNet Europe's Code of Conduct for brain banking. Journal of Neural Transmission. 2015 Jul;122(7):937-40. https://doi.org/10.1007/s00702-014-1353-5

Author

Klioueva, Natasja M ; Rademaker, Marleen C ; Dexter, David T ; Al-Sarraj, Safa ; Seilhean, Danielle ; Streichenberger, Nathalie ; Schmitz, Peer ; Bell, Jeanne E ; Ironside, James W ; Arzberger, Thomas ; Huitinga, I. / BrainNet Europe's Code of Conduct for brain banking. In: Journal of Neural Transmission. 2015 ; Vol. 122, No. 7. pp. 937-40.

BibTeX

@article{3fcd1b3cb07145988bfa08b6ee91b6da,
title = "BrainNet Europe's Code of Conduct for brain banking",
abstract = "Research utilizing human tissue and its removal at post-mortem has given rise to many controversies in the media and posed many dilemmas in the fields of law and ethics. The law often lacks clear instructions and unambiguous guidelines. The absence of a harmonized international legislation with regard to post-mortem medical procedures and donation of tissue and organs contributes to the complexity of the issue. Therefore, within the BrainNet Europe (BNE) consortium, a consortium of 19 European brain banks, we drafted an ethical Code of Conduct for brain banking that covers basic legal rules and bioethical principles involved in brain banking. Sources include laws, regulations and guidelines (Declarations, Conventions, Recommendations, Guidelines and Directives) issued by international key organizations, such as the Council of Europe, European Commission, World Medical Association and World Health Organization. The Code of Conduct addresses fundamental topics as the rights of the persons donating their tissue, the obligations of the brain bank with regard to respect and observance of such rights, informed consent, confidentiality, protection of personal data, collections of human biological material and their management, and transparency and accountability within the organization of a brain bank. The Code of Conduct for brain banking is being adopted by the BNE network prior to being enshrined in official legislation for brain banking in Europe and beyond.",
author = "Klioueva, {Natasja M} and Rademaker, {Marleen C} and Dexter, {David T} and Safa Al-Sarraj and Danielle Seilhean and Nathalie Streichenberger and Peer Schmitz and Bell, {Jeanne E} and Ironside, {James W} and Thomas Arzberger and I. Huitinga",
year = "2015",
month = "7",
doi = "10.1007/s00702-014-1353-5",
language = "English",
volume = "122",
pages = "937--40",
journal = "Journal of Neural Transmission",
issn = "0300-9564",
publisher = "Springer Verlag GmbH",
number = "7",

}

RIS

TY - JOUR

T1 - BrainNet Europe's Code of Conduct for brain banking

AU - Klioueva, Natasja M

AU - Rademaker, Marleen C

AU - Dexter, David T

AU - Al-Sarraj, Safa

AU - Seilhean, Danielle

AU - Streichenberger, Nathalie

AU - Schmitz, Peer

AU - Bell, Jeanne E

AU - Ironside, James W

AU - Arzberger, Thomas

AU - Huitinga, I.

PY - 2015/7

Y1 - 2015/7

N2 - Research utilizing human tissue and its removal at post-mortem has given rise to many controversies in the media and posed many dilemmas in the fields of law and ethics. The law often lacks clear instructions and unambiguous guidelines. The absence of a harmonized international legislation with regard to post-mortem medical procedures and donation of tissue and organs contributes to the complexity of the issue. Therefore, within the BrainNet Europe (BNE) consortium, a consortium of 19 European brain banks, we drafted an ethical Code of Conduct for brain banking that covers basic legal rules and bioethical principles involved in brain banking. Sources include laws, regulations and guidelines (Declarations, Conventions, Recommendations, Guidelines and Directives) issued by international key organizations, such as the Council of Europe, European Commission, World Medical Association and World Health Organization. The Code of Conduct addresses fundamental topics as the rights of the persons donating their tissue, the obligations of the brain bank with regard to respect and observance of such rights, informed consent, confidentiality, protection of personal data, collections of human biological material and their management, and transparency and accountability within the organization of a brain bank. The Code of Conduct for brain banking is being adopted by the BNE network prior to being enshrined in official legislation for brain banking in Europe and beyond.

AB - Research utilizing human tissue and its removal at post-mortem has given rise to many controversies in the media and posed many dilemmas in the fields of law and ethics. The law often lacks clear instructions and unambiguous guidelines. The absence of a harmonized international legislation with regard to post-mortem medical procedures and donation of tissue and organs contributes to the complexity of the issue. Therefore, within the BrainNet Europe (BNE) consortium, a consortium of 19 European brain banks, we drafted an ethical Code of Conduct for brain banking that covers basic legal rules and bioethical principles involved in brain banking. Sources include laws, regulations and guidelines (Declarations, Conventions, Recommendations, Guidelines and Directives) issued by international key organizations, such as the Council of Europe, European Commission, World Medical Association and World Health Organization. The Code of Conduct addresses fundamental topics as the rights of the persons donating their tissue, the obligations of the brain bank with regard to respect and observance of such rights, informed consent, confidentiality, protection of personal data, collections of human biological material and their management, and transparency and accountability within the organization of a brain bank. The Code of Conduct for brain banking is being adopted by the BNE network prior to being enshrined in official legislation for brain banking in Europe and beyond.

U2 - 10.1007/s00702-014-1353-5

DO - 10.1007/s00702-014-1353-5

M3 - Article

VL - 122

SP - 937

EP - 940

JO - Journal of Neural Transmission

JF - Journal of Neural Transmission

SN - 0300-9564

IS - 7

ER -

ID: 1411784