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Design of a European code of conduct for brain banking. / Klioueva, N.M.; Rademaker, M.; Huitinga, I.

Brain Banking. ed. / I. Huitinga; M.J. Webster. Vol. 150 Elsevier B.V., 2018. p. 51-81 (Handbook of Clinical Neurology; Vol. 150).

Research output: Chapter in book/volumeChapterScientificpeer-review

Harvard

Klioueva, NM, Rademaker, M & Huitinga, I 2018, Design of a European code of conduct for brain banking. in I Huitinga & MJ Webster (eds), Brain Banking. vol. 150, Handbook of Clinical Neurology, vol. 150, Elsevier B.V., pp. 51-81. https://doi.org/10.1016/B978-0-444-63639-3.00005-0

APA

Klioueva, N. M., Rademaker, M., & Huitinga, I. (2018). Design of a European code of conduct for brain banking. In I. Huitinga, & M. J. Webster (Eds.), Brain Banking (Vol. 150, pp. 51-81). (Handbook of Clinical Neurology; Vol. 150). Elsevier B.V.. https://doi.org/10.1016/B978-0-444-63639-3.00005-0

Vancouver

Klioueva NM, Rademaker M, Huitinga I. Design of a European code of conduct for brain banking. In Huitinga I, Webster MJ, editors, Brain Banking. Vol. 150. Elsevier B.V. 2018. p. 51-81. (Handbook of Clinical Neurology). https://doi.org/10.1016/B978-0-444-63639-3.00005-0

Author

Klioueva, N.M. ; Rademaker, M. ; Huitinga, I. / Design of a European code of conduct for brain banking. Brain Banking. editor / I. Huitinga ; M.J. Webster. Vol. 150 Elsevier B.V., 2018. pp. 51-81 (Handbook of Clinical Neurology).

BibTeX

@inbook{1fc700efcd2e47cf8885c62f144df0c7,
title = "Design of a European code of conduct for brain banking.",
abstract = "The BrainNet Europe consortium, which is a consortium of 19 European brain banks, took the initiative to draft a series of documents to provide an ethical framework for brain banks to follow. The framework includes an ethical code of conduct, a model for brain bank regulations, and a toolkit containing severaldocuments. The sources for the information included came from the laws, regulations, and guidelines (declarations, conventions, recommendations, guidelines, and directives) that had been issued by international key organizations, such as the Council of Europe, European Commission,World Medical Association, and World Health Organization. The code of conduct addresses fundamental topics such as the rights of the persons donating their tissue, the obligations of the brain bank with regard to respect and observanceof such rights, informed consent, confidentiality, protection of personal data, collections of human biologic material and their management, and transparency and accountability within the organization of a brain bank. The code of conduct was ratified by all European brain banks in 2009. This chapter describesthe process of establishing the code of conduct within the BrainNet Europe consortium and elaborates on three key aspects of the code of conduct, namely informed consent, genetics, and financial aspects in brain banking.",
author = "N.M. Klioueva and M. Rademaker and I. Huitinga",
year = "2018",
doi = "10.1016/B978-0-444-63639-3.00005-0",
language = "English",
volume = "150",
series = "Handbook of Clinical Neurology",
publisher = "Elsevier B.V.",
pages = "51--81",
editor = "I. Huitinga and M.J. Webster",
booktitle = "Brain Banking",
address = "Netherlands",

}

RIS

TY - CHAP

T1 - Design of a European code of conduct for brain banking.

AU - Klioueva, N.M.

AU - Rademaker, M.

AU - Huitinga, I.

PY - 2018

Y1 - 2018

N2 - The BrainNet Europe consortium, which is a consortium of 19 European brain banks, took the initiative to draft a series of documents to provide an ethical framework for brain banks to follow. The framework includes an ethical code of conduct, a model for brain bank regulations, and a toolkit containing severaldocuments. The sources for the information included came from the laws, regulations, and guidelines (declarations, conventions, recommendations, guidelines, and directives) that had been issued by international key organizations, such as the Council of Europe, European Commission,World Medical Association, and World Health Organization. The code of conduct addresses fundamental topics such as the rights of the persons donating their tissue, the obligations of the brain bank with regard to respect and observanceof such rights, informed consent, confidentiality, protection of personal data, collections of human biologic material and their management, and transparency and accountability within the organization of a brain bank. The code of conduct was ratified by all European brain banks in 2009. This chapter describesthe process of establishing the code of conduct within the BrainNet Europe consortium and elaborates on three key aspects of the code of conduct, namely informed consent, genetics, and financial aspects in brain banking.

AB - The BrainNet Europe consortium, which is a consortium of 19 European brain banks, took the initiative to draft a series of documents to provide an ethical framework for brain banks to follow. The framework includes an ethical code of conduct, a model for brain bank regulations, and a toolkit containing severaldocuments. The sources for the information included came from the laws, regulations, and guidelines (declarations, conventions, recommendations, guidelines, and directives) that had been issued by international key organizations, such as the Council of Europe, European Commission,World Medical Association, and World Health Organization. The code of conduct addresses fundamental topics such as the rights of the persons donating their tissue, the obligations of the brain bank with regard to respect and observanceof such rights, informed consent, confidentiality, protection of personal data, collections of human biologic material and their management, and transparency and accountability within the organization of a brain bank. The code of conduct was ratified by all European brain banks in 2009. This chapter describesthe process of establishing the code of conduct within the BrainNet Europe consortium and elaborates on three key aspects of the code of conduct, namely informed consent, genetics, and financial aspects in brain banking.

U2 - 10.1016/B978-0-444-63639-3.00005-0

DO - 10.1016/B978-0-444-63639-3.00005-0

M3 - Chapter

VL - 150

T3 - Handbook of Clinical Neurology

SP - 51

EP - 81

BT - Brain Banking

A2 - Huitinga, I.

A2 - Webster, M.J.

PB - Elsevier B.V.

ER -

ID: 6300847